AAAP Today

BY ALINA R. CO October 26, 2012 2:22pm

It’s every parent’s dream for his or her child to develop into an accomplished adult and be genuinely happy.

For most, it’s the thought of the child eventually doing well in a chosen career, settling down, and if luck would have it, perhaps blessing them with a grandchild or two.

Yet, these unwritten social standards usually do not apply to parents whose kids have been diagnosed with autism.

A developmental disability that affects the cognitive, social, and psychological abilities of a person, autism is a condition that has no known cause and no known cure.

It is an impairment that affects the way a child processes information and acts upon stimuli in his or her environment. Good news is, with proper care, acceptance, love and nurturing, the child’s condition can improve greatly.

“Doon sa pinakamaliit na achievements, masayang-masaya na kami,” Marilen Zabala, a mother to 28-year-old son Emil, said, recounting how their family celebrated their son’s littlest achievements, like learning how to talk and starring in a musical play in the special school where he studied.

Similarly, Cathy Cham, mother to 21-year-old Vico, shared her joy upon discovering their son’s artistic gifts when he was eight years old.

“Since then, his passion for the arts evolved. Paper dolls in freehand drawing using pen and ink were his early beginnings in arts, then he developed his skills in computer graphics design and now he is into canvass paintings,” Cham said.

Emil had finished a certificate course in music and is now dabbling in culinary arts, while Vico is now finishing his computer graphics design course while having on-the-job-training in an advertising company.

Despite the disabilities, persons with autism have special gifts, and parents can only wish to leave this life knowing their children are happy. And since they cannot be around forever, they want to ensure that someone’s going to take care of them, long after they’re gone.

“Sana bago man lang kami mamatay, makita namin na masaya at kahit papaano ay may fulfillment sa buhay ang anak namin,” Zabala shared.

Evolving needs

According to Dr. Lirio Covey, a clinical psychologist from Columbia University and president of the Association for Adults with Autism, Philippines (AAAP), the fact that adults with this condition won’t live forever is the glaring inevitability that their organization is seeking to address.

“And also, the person with autism has changing needs over the years and the family won’t be able to fulfill those needs in the best way or in the way that’s beneficial to the person with autism,” Covey added.

Dr. Covey’s son Mikey is 34 years old and a resident in a life-sharing group home called Armonk in New York City. Five other men with autism live in the same group home.

“When my son turned 18, I felt really bad for him because he felt he didn’t belong. Whenever we went to parties, he sits in a corner and plays a video game. That’s really isolating, that’s really lonely. Somehow, now in his group home, even though his abilities are limited, he understands there are other people like him and somehow they manage to do things together,” Dr. Covey said.

Since AAAP’s founding last year, Covey, together with parents like Cham, have been combining efforts to build a life-sharing home called “A Special Place” as an alternative home for adults with autism.

Covey envisions it as not just a safe haven for adults with autism, but also as a place where they can take on jobs, as well as find companionship and belongingness.

In the US and other First World countries, there are plenty of state-funded group homes. Here in the Philippines, there are none.

Work in progress

As of now, A Special Place is a work in progress. The AAAP is in need of funding to build six individual houses with farms, as well as educational and recreational areas.

“We are conceptualizing various business models that will enable us to raise money. It has to be self-sustaining. We also want to open up the homes to families who cannot afford to pay so that would mean fund-raising,” Covey said.

For Cham, A Special Place will be Vico’s second home, where he can get to share his life with a community that will care for and understand him.

“Eventually, as we grow old and gray, and incapable of taking care of ourselves, Vico will need a second home where he will belong. But for as long as we are healthy and capable of taking care of him, we would very much like to enjoy our life together,” she said.

An educational symposium

Cham, Covey, together with the member parents of AAAP, talked about A Special Place and other issues concerning adults with autism during a symposium entitled “Diagnostic Treatment and Policy Issues Affecting Adults with Autism” last October 13 at Ateneo Law School in Rockwell Center.

Around 35 people attended this first educational symposium organized by AAAP with the purpose of raising awareness of and addressing the needs of adults with autism.

Ateneo Legal Service Center Asst. Director Atty. Nina Sison-Arroyo talked about the Philippine laws on the rights of persons with disabilities.

Dr. Lourdes “Honey” Carandang, president of the Metropolitan Psychological Corporation, presented a comprehensive framework for understanding autism and families with autism.

She advised the parents, “Don’t feel guilty that you’re not always with the child. Filipino mothers are always guilty, especially if you’re a working mother,” Carandang said, to the laughter of the audience. She quickly added, “but as long as it is in a level that is comfortable, that is okay.”

Dr. Erlinda F. Camara from the University of the Philippines, on the other hand, shared studies conducted here and abroad tackling employment models for persons with autism. She also presented an evaluation of the Philippine workforce, where there is an increasing trend of part-timers, contractuals and freelancers.

The last speaker was Ronald Sanchez, the director of Camphill Community located in California, USA. He shared with the audience his experiences in Camphill, a group home where people with disabilities find a sense of community and society.

A place under the sun

To date, adults with autism are still feeling their way toward finding their place in society.

Emil dreams of managing his own wheat bread sandwich business, while his mother hopes that at least he’d get to apply his culinary skills in a restaurant.

With Vico’s artistic talents, Cham doesn’t stop hoping for a better future for her son.

Cham said, “As parents, we would like him to experience and enjoy life like everyone else. He may have some limitations, but he has gifts more than anyone else. We believe in him so much and with God’s intervention, he will eventually have a place in the sun.” –KG, GMA News

For more details, contact AAAP by e-mailing adultautismphi@gmail.com or aspecialplace.covey27@gmail.com.

Photos courtesy of Association for Adults with Autism, Philippines

Please extend your support to ASP too in the same way you support AAAP. After all, we have a common objective and that is to take care of our PWA children/adults. We are all in this together.

JULY 28 BACK TO BACK SEMINARS
WITH THE SUPPORT OF QUALITY LIFE DISCOVERIES
.

“Vocational Training for Persons with Autism”
9:00-12:00NN
The seminar will center on transition and vocational training concepts, principles, and best practices that will equip participants in creating vocational skills training programs for adolescents and adults with special needs. These will be coupled with hands-on experiences from vocational skills training and life skills training programs. It will likewise discuss the use of the Structured Teaching principle based on the acclaimed TEACCH approach and its role in program implementation. Factors, issues, and concerns related to work transition will be tackled, as well.

“ABCs of Job Coaching”
1:30-4:30 PM
The seminar will focus on supported employment and job coaching concepts, principles, and practices. It will likewise include guidelines, tips, roles, and responsibilities for job coaches in the Philippine setting. The discussion will be paired with the hands-on experiences of The Learning Center, Inc. (TLC)’s On-the-Job Training Program since 2002.

Ms. Maria Yolanda Michelle A. Bautista or Teacher Landa is a BA Social Science (Major in Behavioral Studies) graduate of UP Manila. She finished her master’s degree in Special Education at UP Diliman, Quezon City. Shortly after, she finished a Social Entrepreneurship Training Program for Professionals at Ateneo de Manila University’s School of Government. Teacher Landa is the Curriculum Director of The Learning Center, Inc. (TLC), a non-stock, non-profit special education school for individuals with special needs. She administers the schools internal and external affairs and develops the school’s Special Education curricula. She likewise develops TLC’s vocational skills training curriculum, which focuses on work transition training programs in sheltered social enterprise and community-based settings. Her thesis, “Factors Related to Work Transition for Persons with Special Needs” has been published in the Research Journal in Special Education & Independent Living. She completed the Support System for Persons with Disabilities Course under the Japan International Cooperation Agency (JICA) Training Program for Young Leaders 2011 in Fukui, Japan. Teacher Landa is a staunch advocate of individuals with special needs and has been a resource person for various articles on Special Education and childhood development. She is regularly requested to give lectures on various Special Education topics of interests and publishes her professional recommendations through her “Dear Teacher Landa” advice blog.

Venue: Quality Life Discoveries, 70, 20th Avenue, Murphy, Quezon City
Seminar Fee is inclusive of certificate, handouts and snacks.

Pre-registered participants may pay to Autism Society Philippines, Metro Bank, Kamias Branch Account # 047-3-04751874-2. Please fax the deposit slip with the name/s of participant/s to ASP office and bring it on the day of the seminar. On-site registrants will be accepted depending on the availability of slots. There will only be 70 slots available. No refund will be given to participants who did not show up on the date of the seminar. For more details, please call ASP at 9266941/9298447.

The ASP Seminar Series serves as a platform to educate Filipino parents and professionals on the various interventions, modalities and theories surrounding Autism Spectrum Disorder. Their application and implementation are left at your discretion. The views and personal experiences of the speakers are of their own and don’t necessarily reflect that of the views of the organization.